Friday, December 11, 2009
I don't have many pictures of treatment so I figure I'll just write a bit to get everyone caught up on whats going on. Treatment has been going good.. no complaining here! I actually was really lucky because over Thanksgiving I had my first week off of chemo to get ready for scans. So since I had a break with nothing to do, I decided to throw a surgery in there haha. On Tuesday before Thanksgiving, I had surgery on my mouth. Lets just say... chemo has a way of screwing up just about everything! The surgery went good and I was even able to eat on Thanksgiving:) I just had and MRI, CT Scan, and PET Scan done this last week and the results from all of them were positive! My doctors can't see anything in them to worry about which is great to hear. This week I just started Irinotechan for my 3rd time. I get this chemo 5 days in a row and its a little bit tougher on me than the usual but its going good so far. The picture of my swollen arms above is from the MRI. The nurse put the I.V. for the contrast on the side of my wrist after 2 other tries in my arm. Once she put it in my wrist she kept shoving the needle in further and further and I could feel her popping the vein. I got in to do the MRI and the guy injected the contrast into the I.V. and it literally brought tears to my eyes. I couldn't figure out what the pain was but by the time I sat through a 45 minute MRI with my arm feeling like it was going to explode I kinda freaked out haha. So we went to get the I.V. out and I looked down at my arm and it was HUGE! The nurse had infiltrated my muscle tissue with the IV contrast! Anyways.. long story short, we won't be going back to that hospital! haha the other pictures are just some random ones. Me, Cam, and Crew are showing the manicans at Forever 21 what we are made of... The smiley face in pills is just the amount of pills I take at one time on a normal day:) I've learned you have to find happiness in small things! love you all!!
Well it's official.... I'm a horrible blogger! haha After getting chemo every week and the same things happen, you don't feel the need to keep blogging about it haha... but since Halloween there have been some fun things that happened. I got to go to St. George again to see all my friends and watch the Rebelettes dance:) It was a blast, my family and I feel like it's some dang good medicine for me to get to go down every now and then!! While I was in St. George this last time the only thing stopping me from having a good time was this massive radiation burn! I did radiation for 6 weeks every day and about half way through treatment you could start to tell that it was getting some serious damage to the area. But of course we had to keep going... it started out as a little blister but once it popped the skin just kept peeling back more and more. Everyday I would get radiation another layer of skin would just disinigrate. So in the end it was this massive burn about 6 inches long by 5 inches wide.. and it didn't start getting better till about 2 weeks after I was done with radiation. I was hobbling around like a 95 year old woman for quite sometime! Here are some pics of St. George and the burn. Sorry if the burn pictures are a bit explicit haha parent supervision is advised:)
Thursday, November 5, 2009
Halloween this year was the bomb haha! I usually don't get all into Halloween but with a bald head I decided to milk it for all its worth:) my brother-in-law Matt is an artist.... ( his blog is on my page.. go check it out!)..... and so I asked him if he would draw a sleeve of tatoos on my HEAD :) It turned out so good that when I went out people actually thought they were real. I had to correct them that they were fake and no I did not shave my head for Halloween haha. My family is so awesome when Halloween comes around because the all dress up.. even my 2 day old niece Jane had her princes costume on:)
Sooo what happened was I was really sick for like 2 weeks and so they figured out that I needed more blood... Before I got the blood I could not even walk in the hospital without stopping every few steps to sit down. It was amazing to me how weak I got. So the possibility of going to St. George was looking very slim. I got the blood and I literally got up and walked out of the hospital without taking a break. It was so crazy! I also hadn't eaten hardly anything for the whole time I was sick.. and after I got a bit of a threat from my nutritionist (saying she was going to feed me out of a tube if I didn't start eating haha) I decided to give it a try. So long story short I ate a whole Jimmy Johns sandwich hahaha its amazing what a little blood can do!! So since I was feeling great, my mom, me, Michelle, Jackie, and baby Olivia loaded up and drove to St. George for Mallory's wedding, to see all my besties, and to get away ... far away from the hospital:)
Here are a few pictures of me just loving life while having to get blood transfusions:) I have had 3 so far and more are expected. Me and my mama have to sit in these beautiful blue chairs for about 5 hours, so you can imagine why I get a little upset everytime I find out I have to get another one...I usually handle blood pretty well but there is something about a bag of blood going into you that makes me feel a bit woozy. They usually cover it for me so i don't have to look at it.. but looking at blood is alot better than smelling the nurses food when I'm already trying my hardest not to puke in the first place... oh the joys:)
Friday, October 2, 2009
I don't have pictures to post but I thought I'd tell you all a little bit about my week. From the chemo I got two weeks ago now, my blood counts have taken a serious downfall. I've had to get I.V.s and shots and meds and all that, but the real treat was when they told me I was going to give MYSELF my own shots until my white blood cell count came up.. how could I be so lucky?? haha.. and they weren't kidding. Today I gave myself my 13th shot in a row. My mom has had to help me out a few times because I just can't get myself to jab myself with the needle! Unfortunately along with that, my red blood cell counts nearly diminished too! I was planning on just going in on wednesday for the normal chemo that I get and they called us early the morning of and said I need to come to primary childrens right then to get blood! Man I can't tell you how fun that day was. I think me and my poor mom sat in the hospital for over 9 hours. I kept telling my mom that for the first time I was just pissed off... and to top it off.. the blood made me sicker than I've felt almost this whole time. But the bright thing is that the color came back into my face and I had a bit more energy than before. Its amazing what happens when your blood is dead haha. The next day I went to the IMED in Murry to get needle biopsies... sounds fun right? ... wrong! I didn't realize it was a legit procedure.. hospital gown... sedation.. the whole package. They only knocked me out enough to keep me calm so I clearly remember all 3 of the 8 inch needles that went in my leg.. needles don't normally scare me but that was a bit much for me. I also got all set up for the radiation that I will start next week. I never thought I'd be one to get a tatoo... but I got 5!!! haha (they tatoo little dots on you to line you up to the radiation machine perfectly). They also do that with needles. My home health nurse is so sweet but she can't seem to hit my veins. She pokes me over and over again.. and finally today I told my mom... ENOUGH WITH THE NEEDLES! haha but I know I have much more to come! Anyways it's been a fun and exciting week.. and believe it or not I'm happy to be here! love you all!
Tuesday, September 22, 2009
Wayne called me to come over one night to Shave his head bald! I was so nervous because it was my first time bicking someones head.. his life was literally in danger! As soon as we started Wayne's new hair due, Aiden, my 5 year old nephew was sure that he wanted to do it too. And then came Carson to the party so by the end of the night all 4 of us were bald. Brock joined the bald crew the next day and to see more cute pictures go to Michelles blog, her link is on my page.
Once Kristie started shaving it all off... I started to get a little sad.. so I started singing.. and if you watch the video long enough, you'll hear all my sisters join in with me. Thats what I call love:) We are not very good.. but it is my favorite song, and after we slaughtered it with our amazing voices, it remains a top favorite!!
I finally decided after many other hair pulling out incidents like my video below that it was time for the hair to go. So my family being the coolest people ever that they are, decided to make a family event out of it haha. We all got together over at Jackie's house and not only shaved my head.. but all the guys went through it with me:) first we cut it into a baby looking haircut... i was sooo not cute ha.. and then onto the MOHAWKS! I definately found my inner punk once I got the haircut I've been too scared to get but always wanted to try. My families sense of humor makes it so much easier for me to keep my own sense of humor up and running through the tough times. Without them, this would be so much harder. I love you guys!!
Thursday, September 10, 2009
Well if I've learned anything, it would be that theres a first time for everything. I never pictured myself actually going wig shopping or looking for hats and scarves to cover up my bald head.. But as usual, life never goes as planned. So here I am documenting my experiences. First we hit up the wig shop, and if I was worried before we got there, it was nothing to how worried I was once we finished. At the first wig shop I tired on everything... red wig. long wig.. short wig... blond wig.. and NOTHIN! I did finally find a cute wig at a different store that you will see me in from now on so i'm not going to ruin the surprise by posting pictures ;) My next experience was with my too fabulous sisters and my mother. We hit up about every hat and scarf store in the mall and these were the best we could come up with! haha jk not for reals.. but like the wig, those are a surprise:)